My gorgeous boys and me and jamie's wheels
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My diary/thoughts. After being diagnosed with a brain tumour in december 2008 my life has changed dramatically in a lot of ways. Some expected and some that have surprised me! Just wanna get out some of my feelings, thoughts, experiences and all the crap in between. It's up to you if you wanna have a peak and read it.
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About Me
- Just Jane
- I'm Jane, Aged 36 (just) My family.... Lee, Aka 'my Lee': The love of my life and husband (been with Lee nearly half my life already!) Jamie: R gorgeous little man, now 8yrs old (he was 2 when I was diagnosed) My personal journey now, is to discover the new version of me. (lameO) :-)
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The Brain bit for People that wanna know
I have a Diffuse Astrosytoma Grade II (Low Grade Glioma).
It is on the Left side of my frontal lobe.
Have had a biopsy to confirm prognosis.
Surgeons have said its too risky to operate (so basically inoperable).
As a result of the tumour I suffer with epilepsy, simple partial seizures & generalised seizures. I am currently on 2 different AED's and am living with uncontrolled epilepsy.
Treatment: Wait and see, get scanned every 6 mnths.
It is on the Left side of my frontal lobe.
Have had a biopsy to confirm prognosis.
Surgeons have said its too risky to operate (so basically inoperable).
As a result of the tumour I suffer with epilepsy, simple partial seizures & generalised seizures. I am currently on 2 different AED's and am living with uncontrolled epilepsy.
Treatment: Wait and see, get scanned every 6 mnths.
Since the diagnosis of the tumor, do you view life differently, like what things are truly important?
ReplyDeleteMy dad died of a sudden heart attack in 2005. That was the time that made me re-evaluate my life and really think 'what is it all about?' and what is important to me. Not jobs, not money, not things. But the people we choose to spend r life with. But most of all, to do things that make us happy. All my diagnosis has done is make me want the people around me to come to the same conclusion and enjoy me whilst I'm still here.
ReplyDeleteIt is amazing how things like someone's passing can make you re-evaluate your life. It is also amazing how many of us are just going through life taking it for granted. My dad also passed away suddenly when I was a teenager, when I needed him the most. I don't have the intense look on life as you do now. But I do try to live each day as it is my last. There is a certain kind of legacy I want to leave to my three boys and wife and the people who know me. What legacy do you want to leave?
ReplyDeleteHaven't really thought about!! it leave it with me, i'm sure I will come up with a few ideas.
ReplyDeleteHi Jane. It's Andy Edmunds here so glad the bike is helping you and Jamie get out and about. He is a real 50/50 split of you and Lee. I was so shocked to hear of your diagnosis, terrible things always seem to happen to the best people! Say hi to Lee for me. Hope to hear from you soon. Andy
ReplyDelete