Wednesday, 27 May 2015

Seizures fucking seizures

...... I had 5 in a row last week :-(
Took me 3 days to sleep it all off and now I'm on clobazam till I next see my consultant!
Just when I think I'm cruising along pretty steady BAM it all changes!!

Friday, 1 May 2015

The Shower!!!!

It's good to cry in the shower, it won't ask why!
It's good to think in the shower, it won't interrupt.
It's good to argue in the shower, it won't try to reason.
It's good to swear in the shower, it won't be offended.
It's good to fart in the shower, it won't smell anything.
It's good to scream in the shower, it won't hear thing.
It's good to do what ever you want in the shower, it won't judge you!
And if you remember to use the shower for it's intended purpose, I'm sure it won't mind that either ;-)


Monday, 20 April 2015

Sad times

You just except the shit
expect the crap
I don't wanna be bald
I don't wanna be fat
It's sad being me in my heart most of the time
I don't feel any different as time goes by
am I just waiting to die!!!?

Sunday, 29 March 2015

Why me!

"Why me!"
"Why me!"
"Why me!"
Everyone can say that
at least times 3

It's hard to be strong
When it's going so wrong

Sometimes it's easier to hide away
instead of facing each and everyday

It's hard to connect
Hard to let go
Do what is needed
Just take it slow

If we didn't love
or even care
We wouldn't have
so much to share

I'm so proad of You & Me
and it's still okay to say
"Why me"
times 3

Wednesday, 25 March 2015

No such thing as "Normal"

We all struggle.............

We all struggle to be strong when we need to be. Whether it's for ourselves or someone else that we love and care for.
Hang on in there and do what you can. The smallest thing can make the biggest smile.

Wednesday, 18 March 2015

Its all bullshit

Its all fucking shit it's shit shit shit shit shit bollocky fucking shity fuck.
It's all fucking bullshit. nobody knows, nobody feels it, nobody gets told no sorry you can't do that & how many times do I have to hear those words?, how many times I have to just deal with it?, just move on? how many people say those words and not realise its another long line of can't do's and say it like it's no big deal!!!!!!! well it is a big deal a very large big fucking deal. Nobody knows how draining every fucking day can be. I shall just live 50% of my life because of this shity fucking illness that stops me, believe it or not, it's not just me and my seizures being the problem. It's other people, that just immediately say no or you can't do that as soon as they hear the magic word EPILEPSY. It's like poison as soon as it's said! It's not fucking rabbis!!!! I live with this every fucking day and today was just one too many "you can't do that"
Complete fucking bullshit.
Cried a lot and now I'm going to have a crisp sandwich and have some time to wollow in self pity for about half an hour. Then I will just move always.

Monday, 26 January 2015

My Wise Words for 2015......

Just chuck it in the
And move on............

If you have any wiseness feel free to add! :-D