Subscribe to:
Post Comments (Atom)
My diary/thoughts. After being diagnosed with a brain tumour in december 2008 my life has changed dramatically in a lot of ways. Some expected and some that have surprised me! Just wanna get out some of my feelings, thoughts, experiences and all the crap in between. It's up to you if you wanna have a peak and read it.
Click here for my other blogs
About Me
- Just Jane
- I'm Jane, Aged 36 (just) My family.... Lee, Aka 'my Lee': The love of my life and husband (been with Lee nearly half my life already!) Jamie: R gorgeous little man, now 8yrs old (he was 2 when I was diagnosed) My personal journey now, is to discover the new version of me. (lameO) :-)
Blog Archive
-
▼
2012
(45)
-
▼
January
(18)
- Day 21 of 30
- Day 20 of 30
- Day 15 of 30
- Blog helper
- Yes another Hair post!!
- Family Art & Craft afternoon
- Day 13 of 30
- The latest (day 12 of 30)
- The mask set up (day 7 of 30)
- Hair update (day 6 of 30)
- How lush is this
- Monday (day 5 of 30)
- Sunday 8th
- During treatement (day 2 of 30)
- Day 1 of 30
- Mask & CT Scan (video 3)
- The planning appointment (video 2)
- Befofe my treatment starts (video 1)
-
▼
January
(18)
Labels
- My random lists (2)
- Poems and Little Stories (19)
- Quotes (25)
- video (18)
Followers
The Brain bit for People that wanna know
I have a Diffuse Astrosytoma Grade II (Low Grade Glioma).
It is on the Left side of my frontal lobe.
Have had a biopsy to confirm prognosis.
Surgeons have said its too risky to operate (so basically inoperable).
As a result of the tumour I suffer with epilepsy, simple partial seizures & generalised seizures. I am currently on 2 different AED's and am living with uncontrolled epilepsy.
Treatment: Wait and see, get scanned every 6 mnths.
It is on the Left side of my frontal lobe.
Have had a biopsy to confirm prognosis.
Surgeons have said its too risky to operate (so basically inoperable).
As a result of the tumour I suffer with epilepsy, simple partial seizures & generalised seizures. I am currently on 2 different AED's and am living with uncontrolled epilepsy.
Treatment: Wait and see, get scanned every 6 mnths.
Thanks for being brave enough to show all this stuff. I would've laughed just as much as you did, from nerves! As soon as anyone points a camera at me I fall apart :) I'll stick to typing I think. Don't worry about your hair, I know its a bit stalkery to say ;-) but you have a gorgeous face, your hair really doesn't matter xxxxxx
ReplyDeleteThanks for saying that my sweet or should i say stalker!:-)
ReplyDeleteBut my hair is my thing (everyone has their thing) and my hair is mine. So it matters to me.
It's not all going to fall out, just in random clumps. So i am going to look like some skanky sewage rat and it could stay that way!!!
I'm not going to shave it all off (been there, done that...) but that was my choice. This style is not of my choosing.
I shaved it off before because a hairdresser totally fucked my hair and after an hour of crying i decided no hair was better than that hair.
MY HAIR IS MY THING
P.s sorry, I know you were just to be nice.
ReplyDeleteok ok ok, your hair is your thing jeez woman!!!.....although I reckon you could carry off a skanky sewer rat look with that face :) I wasn't just trying to be nice either, I was saying what I thought you stinker :P xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
ReplyDeleteP.S. I don't think I have a 'thing' although I wouldn't like to lose my hair because then my ears would show and I'd look like an elf, also I reckon my head would look bumpy..........ahhhh the joys of predicting the future with a tumour eh? I'm still your stalker, even though you have 'hair rants' at me :P xxxxxx
ReplyDeleteI will have more hair rants at you if you mention the hair!!! so shut up ya bitch
ReplyDeleteThinking on it I've got my massive biopsy scar on my head. Chat soon Elfy :-)