tag:blogger.com,1999:blog-50454117579015219742024-03-14T02:18:13.584+00:00Thats life................My diary/thoughts.
After being diagnosed with a brain tumour in december 2008 my life has changed dramatically in a lot of ways. Some expected and some that have surprised me!
Just wanna get out some of my feelings, thoughts, experiences and all the crap in between. It's up to you if you wanna have a peak and read it.Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.comBlogger246125tag:blogger.com,1999:blog-5045411757901521974.post-90729362465071638082015-05-27T21:30:00.002+01:002015-05-27T21:30:37.018+01:00Seizures fucking seizures...... I had 5 in a row last week :-(<br />
Took me 3 days to sleep it all off and now I'm on clobazam till I next see my consultant!<br />
Just when I think I'm cruising along pretty steady BAM it all changes!!Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com1tag:blogger.com,1999:blog-5045411757901521974.post-39173423973900530002015-05-01T11:31:00.004+01:002015-05-01T11:44:46.752+01:00The Shower!!!!It's good to cry in the shower, it won't ask why!<br />
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It's good to think in the shower, it won't interrupt.</div>
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It's good to argue in the shower, it won't try to reason.</div>
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It's good to swear in the shower, it won't be offended.</div>
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It's good to fart in the shower, it won't smell anything.</div>
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It's good to scream in the shower, it won't hear thing.</div>
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It's good to do what ever you want in the shower, it won't judge you!</div>
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And if you remember to use the shower for it's intended purpose, I'm sure it won't mind that either ;-)</div>
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<br /></div>
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:-D</div>
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Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-27663071514032438762015-04-20T21:00:00.004+01:002015-04-20T21:00:48.543+01:00Sad timesYou just except the shit<br />
expect the crap<br />
I don't wanna be bald<br />
I don't wanna be fat<br />
It's sad being me in my heart most of the time<br />
I don't feel any different as time goes by<br />
am I just waiting to die!!!?Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-26106672701279494922015-03-29T14:29:00.000+01:002015-03-29T14:29:56.153+01:00Why me!"Why me!"<br />
"Why me!"<br />
"Why me!"<br />
Everyone can say that<br />
at least times 3<br />
<br />
It's hard to be strong<br />
When it's going so wrong<br />
<br />
Sometimes it's easier to hide away<br />
instead of facing each and everyday<br />
<br />
It's hard to connect<br />
Hard to let go<br />
Do what is needed<br />
Just take it slow<br />
<br />
If we didn't love<br />
or even care<br />
We wouldn't have<br />
so much to share<br />
<br />
I'm so proad of You & Me<br />
and it's still okay to say<br />
"Why me"<br />
times 3Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com13tag:blogger.com,1999:blog-5045411757901521974.post-37061021145521103412015-03-25T22:40:00.000+00:002015-03-25T22:40:23.053+00:00No such thing as "Normal"<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1eGLqcbLfYet1w_Ry3hLEFQ7aUf0LDo1etkU5Z2xWwfTqlAvkhPIZYdB2BSXu63oJeHiX3djLXXq2FOQ8NpLu6S_Hg-O3GkR97oOENPHi-miCFerKsmxPx3wnFSqgK76PwmgkcpDseow/s1600/download.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi1eGLqcbLfYet1w_Ry3hLEFQ7aUf0LDo1etkU5Z2xWwfTqlAvkhPIZYdB2BSXu63oJeHiX3djLXXq2FOQ8NpLu6S_Hg-O3GkR97oOENPHi-miCFerKsmxPx3wnFSqgK76PwmgkcpDseow/s1600/download.jpg" /></a></div>
<br />Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-14182906515401785262015-03-25T22:19:00.001+00:002015-03-25T22:19:51.664+00:00We all struggle.............<div class="separator" style="clear: both; text-align: center;">
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<br />
We all struggle to be strong when we need to be. Whether it's for ourselves or someone else that we love and care for.<br />
Hang on in there and do what you can. The smallest thing can make the biggest smile.<br />
<br />
<br />Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-78291967735248206562015-03-18T11:58:00.000+00:002015-03-18T11:58:37.371+00:00Its all bullshitIts all fucking shit it's shit shit shit shit shit bollocky fucking shity fuck.<br />
It's all fucking bullshit. nobody knows, nobody feels it, nobody gets told no sorry you can't do that & how many times do I have to hear those words?, how many times I have to just deal with it?, just move on? how many people say those words and not realise its another long line of can't do's and say it like it's no big deal!!!!!!! well it is a big deal a very large big fucking deal. Nobody knows how draining every fucking day can be. I shall just live 50% of my life because of this shity fucking illness that stops me, believe it or not, it's not just me and my seizures being the problem. It's other people, that just immediately say no or you can't do that as soon as they hear the magic word EPILEPSY. It's like poison as soon as it's said! It's not fucking rabbis!!!! I live with this every fucking day and today was just one too many "you can't do that"<br />
Complete fucking bullshit.<br />
Cried a lot and now I'm going to have a crisp sandwich and have some time to wollow in self pity for about half an hour. Then I will just move on......as always.<br />
<br />Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-31937628346650068232015-01-26T18:49:00.001+00:002015-01-26T21:24:20.962+00:00My Wise Words for 2015......Just chuck it in the<br />
FUCK IT BUCKET<br />
And move on............<br />
:-D<br />
<br />
<br />
If you have any wiseness feel free to add! :-DJust Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com1tag:blogger.com,1999:blog-5045411757901521974.post-66897413308956343352015-01-26T18:44:00.000+00:002015-01-26T18:44:51.894+00:00So what is 2015 gonna bring!!?Things are still hard!! Maybe even harder And now we know why.<div>
Scan results just before crimbo revealed that I now have a considerable amount of scar tissue on my brain. Scar tissue caused by the radiotherapy I had back in feb 2012. Apparently the scaring can continue to grow 3-5years post treatment!!! (very common) WTF Seriously! We were never told about this, no info on what happens after a year! </div>
<div>
This is why I'm struggling more cognitively and with the long term side effects of the radiotherapy!!! </div>
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2015 Jane Shann mushy pea brain (stage 2) age 36</div>
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Takes me so fucking long to do everything :-( I feel so knackered and useless! Fuck it!!!</div>
Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com7tag:blogger.com,1999:blog-5045411757901521974.post-496004240695433292014-11-06T18:09:00.002+00:002014-11-06T18:09:33.200+00:00SO shattered my eyelids r barely open!I'm soooo fucking shattered all the time! It's really pissing me off now.<br />
I would often have stages of fatigue and stages of energy each lasting a few weeks at a time.<br />
But I have been in this state of fatigue for months now :-( some days not even having the mental energy to type an email or text.<br />
All part of long term side effects of radiotherapy I spose!<br />
<br />
STILL NO FUCKING HAIR it ain't gonna grow back now! (radiotherapy Feb 2012)<br />
<br />
Some days I just feel like a useless scabby arse hole. This week is one of those days.<br />
<br />
Also coming up to 6yrs (Dec 8th) I start thinking about it all at the this time of the year! But I just get on with it.Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-85784407757439628152014-11-06T17:48:00.002+00:002014-11-06T17:48:52.247+00:00Thinking of you all....Thinking of everyone who suffers!!<br />
Suffers pain, whether it be in their body, heart or mind.<br />
It's there with you every moment of every day. Some of us "get it" others not a clue!<br />
Sending a thought to you all xJust Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-22210057209106276002014-03-23T19:46:00.002+00:002014-03-23T19:48:19.549+00:00Just realised....I haven't made a post since Oct 2013! WTF!! didn't realise it had been soooo long<br />
Hey there my lovelies<br />
<br />
HAPPY NEW YEAR (we hope)<br />
The year to be happy<br />
The year to be strong<br />
The year to be loved<br />
The year not to go wrong<br />
<br />Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-43530227804661475732014-03-23T19:36:00.000+00:002014-03-23T19:49:42.295+00:00Twat in a Hat (part 1)<div class="separator" style="clear: both; text-align: center;">
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<br />Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-53269529047119117572014-03-23T19:14:00.000+00:002014-03-23T19:50:25.376+00:00Hair......Still the fucking same<div class="separator" style="clear: both; text-align: center;">
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Radiotherapy february 2012<br />
These photo's March 2014<br />
I think for sure this is now my permanent hair :-( ......mother fuckersJust Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-54490541932489809962013-10-04T23:15:00.002+01:002013-10-04T23:15:17.110+01:00Just to let you know....I fucking love Crisps :-)<br />
.........and my favourite swear word is fucking ;-) ...really!! I hear u cry 'we never would of guessed' :-)Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com1tag:blogger.com,1999:blog-5045411757901521974.post-53887883898690083232013-10-04T23:10:00.001+01:002013-10-04T23:10:11.078+01:00WOW it's all about the birthday'sI am currently planning Jamies 7th birthday party. I was diagnosed when he was 2 and I didn't think I'd get to see his first day at school.<br />
Happy days :-)<br />
<br />
Also I'm approaching another birthday soon. Instead of feeling depressed about getting older. I celebrate another year survived.<br />
<br />Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-27877552519957182082013-10-01T12:59:00.003+01:002013-10-01T13:07:29.111+01:00WE FECKIN DID IT!!! :-)Wooooooo Whoooooooooo<br />
And yes the rumours are true...I did sleep with my medal :-) why not eh!<br />
<br />
I won't lie to you all.... It was fucking horrible, but we survived.<br />
Did it in a great time. In my mind I wanted to do under 5hrs, We did it in 4.5hrs (Didn't wanna drag it out) Originally I thought it would probably take me about 6hrs to walk 13 miles. Well chuffed it didn't<br />
<br />
I'm so proud of our team. It was not an easy challenge for any of us.<br />
Louise my sister had sore, painful feet from start to finish. No complaints. Looked after the team and powered on. SO SO Sooooo proud of her. I would have cried and probably thrown a wobbly if it was me!<br />
<br />
It was great to finally get home (6am) get my trainers & knickers off (freedom & air) and fall into bed.<br />
<br />
Lee was are brilliant support crew. He had a bad cold and was frozen for most of the night. Lee walked with us when we needed him most, 4-7 miles & 10-13 miles defiantly "my hero".<br />
<br />
Amazingly I have raised (with a lot of help from lee) £908.<br />
I didn't even think I would reach my target of £200.<br />
<br />
ALL MONEY RAISED GOES TO 'BRAIN TUMOUR RESEARCH'<br />
<br />
I thought we may as well go for a round figure of £1000, can only hope!!<br />
<a href="http://www.justgiving.com/janeshann">www.justgiving.com/janeshann</a><br />
<br />
Donate if you can. Just click on the link above. It would be lush to be able to give BRAIN TUMOUR RESEARCH a whopping great £1000.<br />
Cheers Guys x<br />
<br />
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<tr><td class="tr-caption" style="text-align: center;">Louise & Me</td></tr>
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WELL DONE TO our team LOUISE, ME, TERESA AND BECKY xxxJust Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com1tag:blogger.com,1999:blog-5045411757901521974.post-82347125166864776132013-09-12T20:25:00.003+01:002013-09-12T20:25:45.565+01:00We all know the normal 5 a day...........This is my five a day<br />
<br />
1. laugh<br />
2. be affectionate<br />
3. Say I love you<br />
4. Eat something naughty but nice<br />
5. Have a poo.Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-88024508471294126552013-09-12T20:17:00.002+01:002013-09-12T20:17:40.509+01:0016 days to go!Shine is getting closer. Pooping my pants now. Still feeling shattered. I will do it tho, even if my eyes start bleeding or I have to crawl over the line or it takes me days. I will fucking do it.<br />
I am doing a long walk on Sunday nearer the 10 mile mark, I hope that gives me more of an idea of how I will get on. The most I've done so far is around 7Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-46287371706772282902013-09-04T20:52:00.001+01:002013-09-04T20:52:43.064+01:00Crashed & BurnedWalked last night with sis. Exhausted this week, really struggling with energy. Managed 3.5 miles in approx 1hr 20mins. Had to drag my arse back to my house. Louise feeds me "tastes of the rainbow" to keep me going :-)<br />
Only 3 weeks on sat till SHINE :-/Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-63054625617638876942013-08-30T16:29:00.000+01:002013-08-30T16:29:04.195+01:00This is what I'm doing with my sister Louise<div class="separator" style="clear: both; text-align: center;">
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<br />Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com2tag:blogger.com,1999:blog-5045411757901521974.post-67024675461257035502013-08-30T16:19:00.000+01:002013-08-30T16:35:30.885+01:00Only 4 weeks...........to go and then it's the big shine walk in London. 13 MILES yes 13 MILES.<br />
Haven't done a big walk since beg of last week. Am cream crackered today :(<br />
Had 2 seizures last week. I think it was because I was exhausted from family and friends staying and 2 long walks and not any proper rest for about 3 weeks!!<br />
Mentally i've been struggling with words the last couple of weeks but I think that is also a tiredness thing.<br />
I'm falling a sleep typing this, so adios my loverlies ;) xxJust Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-88852995972010913532013-08-23T18:33:00.000+01:002013-08-23T18:33:44.824+01:00Happy Days<div class="separator" style="clear: both; text-align: center;">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwK8hftHfR9PqlfDipXusGtoy-Hq4ISvHKJYflcLqXghjajV0nLmVPNGoxKKDm9BZb0T6aeugnD97QYyag5TxloJzcETNXZO752gKNiVljeMvbhhfdikfHDK_ALLWHspJnOp6q1jtsAUs/s1600/1377189890106.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="212" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiwK8hftHfR9PqlfDipXusGtoy-Hq4ISvHKJYflcLqXghjajV0nLmVPNGoxKKDm9BZb0T6aeugnD97QYyag5TxloJzcETNXZO752gKNiVljeMvbhhfdikfHDK_ALLWHspJnOp6q1jtsAUs/s320/1377189890106.jpg" width="320" /></a></div>
Our family holiday in Devon. An adventure we will never forgetJust Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-28491367957980185842013-08-21T08:27:00.001+01:002013-08-21T08:27:32.642+01:00Epic walk :-)<span style="background-color: #e6e4de; color: #4d4840; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 16px;">Me, Louise (my sis) and my friend Emma walked 6.3 miles on Monday evening. So had a bit of dark walking in prep for 'SHINE'. Really proud of all 3 of us. I had a seizure about 20mins in, the girls were great and looked after me. Bit wobbly after seizure, but i always had an arm I could link with :-) Carried on and we completed in approx 2hrs 30mins.</span><br />
<span style="background-color: #e6e4de; color: #4d4840; font-family: Arial, Helvetica, sans-serif; font-size: 13px; line-height: 16px;">Only 5 weeks to go xxx</span>Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0tag:blogger.com,1999:blog-5045411757901521974.post-46110557956282328882013-06-20T11:23:00.001+01:002013-06-20T11:23:11.026+01:00OMG 13 MILES<span style="background-color: white; color: #1c1c1c; font-family: monospace; font-size: 14px; line-height: 20px;"><a href="http://www.justgiving.com/JANESHANN" target="_blank" title="JustGiving - Sponsor me now!"><img alt="JustGiving - Sponsor me now!" height="90" src="http://www.justgiving.com/App_Themes/JustGiving/images/badges/badge9.gif" width="120" /></a></span>Just Janehttp://www.blogger.com/profile/06990203017896229592noreply@blogger.com0