List of drugs tried and tested. This is where I'm at now and I'm still on 3,7 & 9
1.Keppra
2.Carbamazapine
3.Lamotrigine -reduced & will reduce further
4.Oxcarbazine
5.Topiramate
6.Phenytion
7.Clobazam -reduced (very small amount)
8. Zonisamide
9. Epilim -NEW
The only side effect of Epilim is tiredness, which I am struggling with a bit at the moment.
I am still reducing Lamotrigine, so my seizures still happen. But Epilim is looking good at getting some better seizure control. Fingers crossed (as always).
My diary/thoughts. After being diagnosed with a brain tumour in december 2008 my life has changed dramatically in a lot of ways. Some expected and some that have surprised me! Just wanna get out some of my feelings, thoughts, experiences and all the crap in between. It's up to you if you wanna have a peak and read it.
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About Me
- Just Jane
- I'm Jane, Aged 36 (just) My family.... Lee, Aka 'my Lee': The love of my life and husband (been with Lee nearly half my life already!) Jamie: R gorgeous little man, now 8yrs old (he was 2 when I was diagnosed) My personal journey now, is to discover the new version of me. (lameO) :-)
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The Brain bit for People that wanna know
I have a Diffuse Astrosytoma Grade II (Low Grade Glioma).
It is on the Left side of my frontal lobe.
Have had a biopsy to confirm prognosis.
Surgeons have said its too risky to operate (so basically inoperable).
As a result of the tumour I suffer with epilepsy, simple partial seizures & generalised seizures. I am currently on 2 different AED's and am living with uncontrolled epilepsy.
Treatment: Wait and see, get scanned every 6 mnths.
It is on the Left side of my frontal lobe.
Have had a biopsy to confirm prognosis.
Surgeons have said its too risky to operate (so basically inoperable).
As a result of the tumour I suffer with epilepsy, simple partial seizures & generalised seizures. I am currently on 2 different AED's and am living with uncontrolled epilepsy.
Treatment: Wait and see, get scanned every 6 mnths.
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