Tuesday, 29 September 2009
Quotes of the day
-- Toni Morrison
The greatest weakness of most humans is their hesitancy to tell others how much they love them while they're alive.
-- Orlando A. Battista
Chocolate is cheaper than therapy and you don't need an appointment.
-- Catherine Aitken
Sunday, 27 September 2009
Why its a bit of a fuck fuckedy fuck day!
Why can't people believe in themselves? love themselves? be honest with themselves? Why do people live in sadness and regret? Why do people believe they are unworthy? Why are people so afraid of change? afraid of living? afraid of loving? afraid to be who they truly are? afraid of the future and what may or may not happen. Why do people try to change what they are?
People have so much time/not enough time, why waste any of it?
I wish....................................
I could take away people's sadness and the pain in their hearts. Give them courage. Help them to truely be comfortable with being themselves. To find peace and enjoy life.
All of this just fucks me off a bit!!
Life
Life is bliss, taste it. Life is a dream, realize it.
Life is a challenge, meet it. Life is a duty, complete it.
Life is a game, play it. Life is a promise, fulfill it.
Life is sorrow, overcome it. Life is a song, sing it.
Life is a struggle, accept it. Life is a tragedy, confront it.
Life is an adventure, dare it. Life is luck, make it.
Life is too precious, do not destroy it. Life is life, fight for it.
-- Mother Teresa
Quotes of the day
-- Groucho Marx
Never give up on something that you can't go a day without thinking about.
-- Author Unknown
Few of us write great novels; all of us live them.
-- Mignon McLaughlin
Saturday, 26 September 2009
What do I believe?
Some people believe they have a destiny/fate (a predetermined future)
Some people believe in angels, devils and fairies (i don't believe in fairies, but wish they'd do my housework whilst I sleep)
Some people trust in science.
Some people believe in evolution.
Some people believe a pint of beer or a bottle of wine holds all the answers.
Some people believe that we all have a soul mate out there somewhere
Some people believe in heaven and hell
Some people believe in father christmas and the tooth fairy
Some people believe in the spirit world
Some people believe in healing
Some people believe in the power of the mind/thought
Some people believe that everything their parents said is true
Some people trust in modern medicine
Some people believe in living for the moment/living live to the full
Some people believe that everything will sort itself out in the end
Some people believe that everyone will do it for them
A lot of people believe it will never happen to them
Some people believe food is the answer
Some people are unsure of what they believe and some people claim not to believe in anything.
What are beliefs for? why do we need to believe in anything. Maybe its to give us hope, comfort, to belong, reason, safety, happiness, security or maybe its because that's what we have learnt to believe or maybe its r choice to believe after life experiences and events.
Well what do I believe..............I believe
That good or bad everything happens for a reason.
That Lee loves me with all of his heart and soul and will always be there for me no matter what.
That I've found my soul mate
That Jamie will grow to be a loved, fabulous and happy person.
Oh................and I believe in Myself :-)
Quotes of the day
-- Mary Kay Ash
I'm not afraid of storms, for I'm learning to sail my ship.
-- Louisa May Alcott
Life isn't about finding yourself. Life is about creating yourself.
-- George Bernard Shaw
Friday, 25 September 2009
Quotes of the day
-- Ronald David Laing
Beauty, truth, friendship, love, creation---these are the great values of life. We can't prove them, or explain them, yet they are the most stable things in our lives.
-- Jesse Herman Holmes
The first step towards getting somewhere is to decide that you are not going to stay where you are.
-- John Pierpont Morgan
Moving On......
I am moving on
reaching toward my hopes and dreams
It has taken me far too long
to reach this place, it seems
My fears may try to hold me back
To try and block my way
But with courage and faith in my heart
I will get there come what may
The road will be a long one,
And it may be rocky, too
But when I reach this place in time,
My dreams could all shine through
I am coming nearer to my goals
And my excitement grows
The plans I have made will soon be real
Along with the destiny I chose
Though I have been tossed and turned in life's storms
I will surely see a brighter dawn
I'm no longer held back by my fears
I'm finally....Moving On
by Alan Murray
Thursday, 24 September 2009
Silly Giggles
Q. Where do you find a one legged dog?
A. Where you left it.
Q. What's pink and fluffy
A. Pink fluff
Q. What's blue and fluffy
A. Pink fluff holding it's breath
Run away, run away
Anyway what do I wanna say today, not really sure! (i seem to say that a lot when writing my posts)
I have been thinking about when I do get to meet new people and make new friends that it would be nice for people not to know. So that I'm just me and not 'Jane with the brain tumour'. But people do ask basic questions like 'so do you work' 'How come you don't drive' etc etc and I find myself avoiding questions or telling little white lies. But then I don't feel like I'm being myself because I'm an honest and upfront person (as you've probably noticed) and always have been. My thinking was, this is me take it or leave it. But it doesn't seem that simple anymore.
Even if I decided only to tell half the story and just said I had epilepsy (in case I did have a seizure whilst with them etc) But then I have already found that there is a lot of stigma and preconceived ideas around epilepsy. A lot of people see epilepsy as you will start thrashing around, dribbling and biting your tongue. They then shy away from you as they are scared and unsure! Even when I tell them that isn't the case and I have partial seizures. All people seem to hear is 'Epilepsy' run away, run away.
This is one of the things that has surprised me! as I thought 'in this day and age' people are more educated, open minded, understanding, non judgemental and even empathetic to people that live their lives differently, whether it be for health, social or cultural reasons etc. Or is that me living in my little bubble of loveliness???
It isn't nice to be 'Jane with the epilepsy, run away, run away' either. Its as if I'm not me to other people anymore.
I didn't really realise the whole 'epilepsy, run away, run away' thing. Until faced with it recently from a really unexpected person, that is considered to be all of the above. Especially in the job they are involved in. It hasn't just surprised me, but it has deeply upset me too.
Anyway enough said on that one. Before my Diagnosis I would of said 'well if people can't except me for me then they are not worth the trouble' but now I think 'well people won't even give themselves the opportunity to get to know me in the first place'.
I'm sure there are some lovely lovely people out there and some of my existing friends are. But I hope I meet some new lovely lovely people too.
It's hard enough to start looking forward and moving on with your life, let alone when you have such a knock to your confidence!!
Oh well....... 'onwards and upwards' as the saying goes
Wednesday, 23 September 2009
Quotes of the day
-- Ida Scott Taylor
The family you come from isn't as important as the family you're going to have.
-- Ring Lardner
Advice is what we ask for when we already know the answer but wish we didn't.
-- Erica Jong
My bad days
I have 2 types of bad days. Type 1: which is having a shit day because of how I'm feeling and thinking about things that relate to my tumour and how its affecting things in my life (Quite cryey and emotional) then there's Type 2: the type of bad day that we all have, spill the milk, feeling fat, miss the bus, hate work, kids r driving you mad, run out of wine, burnt the dinner etc.
When I have a type 1 bad day there are a lot of fuck fuck fuckedy fucks, my eyes leak a lot and I wanna be left alone to drink wine & eat chocolate and generally be in my own sack of sad shit. Its one of the few times I don't wanna talk and I want be left on my own.
Type 2 (I think everyone must feel the same) I just need a cuddle, to know that i'm loved and appreciated and for someone to listen to my days crap. oh and more wine :-)
Stuck!
Feeling a bit stuck at the moment, nothing is really happening. My volunteer work is taking ages to get started, so am just hanging around waiting for that. Wanna get in to jewelery making, but there are no course's local or even the right course's. Housework, housework, housework, housework, oh and gardening, more housework, ironing, ironing, ironing, washing up, washing up and more washing up!..........You get the idea.
I'm having a type 2 bad day and need a good old fashion moan. Life has become a bit boring and so lonely since my diagnoses, even tho I am trying to get on with my life and give myself a new direction. Something I can get enthusiastic about, meet new people bla bla bla.
Seems like Lee has got all these new things going on, but they don't really involve me! and we haven't got any family time booked either.
Oh well 'life goes on' as they say, I just wish mine would.
Sunday, 20 September 2009
Still feeling like shit
Hope I feel better tomorra, its horrible when you start your week feeling like crap.
Saturday, 19 September 2009
Might have a little sleep
It was pretty heavy and emotional. I feel all my tears have been fully drained now, but its left me exhausted.
Friday, 18 September 2009
Feeling lucky.....
He also has a really nice bum (cheeky!)
I love drinking tea
Drank too much wine.....
Am seeing 'Lisa for Life' today (My life coach) She is like a councillor, but not! She helps we deal with the practical and emotional side of how my life is changing. Its not just talking, its doing as well. She is fantastic and just what I need.
We are dealing with some emotional crap at the moment, hence some of my recent posts. I think in the build up to seeing Lisa I always seem to get a bit emotional! I tend to think about stuff a lot more in the couple of days leading up to seeing her.
Anyway I don't really know how I'm feeling today! a bit thinky I spose and there are still a few tears left in the bottom of the barrel. I'm having a 'just need a hug' day I think.
Me and Jamie always treat ourselves to a 'special lunch' (Lunch out) on a friday after he finishes school and he gets to have a little cup cake. Its our Mummy and Jamie time and I think we both really enjoy it.
Thursday, 17 September 2009
Fed up
I know that some people r happy just to become there illness and r happy to pigeon hole themselves. But I am still Jane and I'm not happy or even comfortable with just being about my illness. Hence my user name 'tumour girl'! (my little piss take) :-) I feel like my tumour is just in the back ground of my life, NOT what I am or my life is about.
Of course it has changed my life and affects the way I live my life now. But hey, I'm still Jane and am now probably an even better version of me.
We all use words to describe our friends, family or people we know to other people. You may have found yourself doing this (I know I have)...... You know bridget don't you?, 'fat bridget'? or You know Julie, the one that had cancer and has the ugly kids? Oh you know steve, bold steve....... and so on.
I have often wondered how someone would discribe me to someone else in a conversation. I used to be 'Jane, the one with no hair' (that was the days when I used to shave my head) 'Jane that works in the gym' thats the few that I know, i'm sure there's others. Anyway my point is that now I know it will be 'you know my friend Jane, the one with the brain tumour' or my daughter/sister/neice/daughter in law/friend with the brain tumour...bla bla bla. You get the picture.
That doesn't bother me so much, because I wouldn't hear that anyway. But what does bother me, is that a lot of people just assume things about me. That I am happy just to be all about my illness, that I wanna talk about it every time I see them, that thats all I have or want to talk about and that I must want them to ask me. It would be nice for someone to say something different or to ask me something else for a change. But that rarely happens now!
If I said, 'I don't wanna talk about that today' I think it would cause embarrasement or tension and maybe make people think I was in denial!
Sometimes I feel like screaming 'THATS NOT ALL I HAVE IN MY LIFE YOU KNOW' I don't blame people for being this way with me, as I know a lot of the time people just don't know what to say to me and they want to show that they care and r interested in whats happening to me etc. But it still does my head in.
Even though I don't wanna be all about my tumour, it feels like other people do.
I don't really know if this is what I wanna say today. It has been on my mind tho, as I've seen 2 poeple this week that I haven't seen for a while and thats all they asked my about!!
I have 2 types of bad days. Type 1: which is having a shit day because of how I'm feeling and thinking about things that relate to my tumour and how its affecting things in my life (Quite cryey and emotional) then there's Type 2: the type of bad day that we all have, spill the milk, feeling fat, miss the bus, hate work, kids r driving you mad, run out of wine, burnt the dinner etc. When I have a type 1 bad day there are a lot of fuck fuck fuckedy fucks, my eyes leak a lot and I wanna be left alone to drink wine & eat chocolate and generally be in my own sack of sad shit. Its one of the few times I don't wanna talk and I want be left on my own. Type 2 (I think everyone must feel the same) I just need a cuddle, to know that i'm loved and appreciated and for someone to listen to my days crap. oh and more wine :-)
Today is a type 1 bad day......Lee's gone to get the wine.
Wednesday, 16 September 2009
Little Boys are Treasures
What's life all about?
Life isn't about keeping score.
It's not about how many friends you have.
Not about if you have plans this weekend or if you're alone.
It isn't about who you're dating, who you used to date,
how many people you've dated,
or if you haven't been with anyone at all.
It isn't about who you have kissed, it's not about sex.
It isn't about who your family is or how much money they have.
Or what kind of car you drive.
Or where you went to school.
It's not about how beautiful or ugly you are.
Or what clothes you wear, what shoes you have on,
or what kind of music you listen to.
It's not about if your hair is blonde, red, black, or brown.
Or if your skin is too light or too dark.
Not about what grades you get, how smart you are,
how smart everybody else thinks you are,
or how smart standardized tests say you are.
It's not about what clubs you're in or how good you are at "your" sport.
It's not about representing your whole being on a piece of paper
and seeing who will "accept the written you."
But, life is about who you love and who you hurt.
It's about who you make happy or unhappy purposefully.
It's about keeping or betraying trust.
It's about friendship, used as a sanctity or a weapon.
It's about what you mean and say, maybe hurtful, maybe heartening.
About starting rumors and contributing to petty gossip.
It's about what judgments you pass and why.
And who your judgments are spread to.
It's about who you've ignored with full control and intention.
It's about jealousy, fear, ignorance, and revenge.
It's about carrying inner hate or love, letting it grow, and spreading it.
But most of all, it's about using your life to touch or poison other people's hearts in such a way that could have never occurred alone. Only you choose the way those hearts are affected, and those choices are what life's all about.
Author: Unknown
Tuesday, 15 September 2009
Spoke to soon.......
I do get stress neck (as I call it) so that has been effecting my sleep. I went and had a deep massage on my neck & shoulders today (lush) it feels a lot better already.
Monday, 14 September 2009
The good bits
The longest I've gone without having a seizure since xmas is 3 days. So am well chuffed with that.
Really not having a good day. Amoungst other things feeling emotional and alone, so just trying to focus on some of the good things.
Really love my trike it's fantastic.
Saturday, 12 September 2009
This quote says it for me.......
For my Lee.......
The Art Of A Good Marriage
Wilferd Arlan Peterson
Happiness in marriage is not something that just happens.
A good marriage must be created.
In marriage the little things are the big things.
It is never being too old to hold hands.
It is remembering to say "I love you" at least once a day.
It is never going to sleep angry.
It is at no time taking the other for granted; the courtship should not end with the honeymoon, it should continue through all the years.
It is having a mutual sense of values and common objectives.
It is standing together facing the world.
It is forming a circle of love that gathers in the whole family.
It is doing things for each other, not in the attitude of duty or sacrifice, but in the spirit of joy.
It is speaking words of appreciation and demonstrating gratitude in thoughtful ways.
It is not looking for perfection in each other.
It is cultivating flexibility, patience, understanding and a sense of humour.
It is having the capacity to forgive and forget.
It is giving each other an atmosphere in which each can grow.
It is a common search for the good and the beautiful.
It is establishing a relationship in which the independence is equal, dependence is mutual and the obligation is reciprocal.
It is not only marrying the right partner, it is being the right partner.
"I love you, not only for what you are, But for what I am when I am with you."
Love you always my friend, my soul mate x x
I am a little frog
Once upon a time there was a bunch of tiny frogs who arranged a running competition.
The goal was to reach the top of a very high tower.
A big crowd had gathered around the tower to see the race and cheer on the contestants....
The race began....
Honestly:
No one in crowd really believed that the tiny frogs would reach the top of the tower.
You heard statements such as:
"Oh, WAY too difficult!!"
"They will NEVER make it to the top."
or:
"Not a chance that they will succeed. The tower is too high!"
The tiny frogs began collapsing. One by one.
Except for those, who in a fresh tempo, were climbing higher and higher....
The crowd continued to yell, "It is too difficult!!! No one will make it!"
More tiny frogs got tired and gave up....
But ONE continued higher and higher and higher....
This one wouldn't give up!
At the end everyone else had given up climbing the tower. Except for the one tiny frog who, after a big effort, was the only one who reached the top!
THEN all of the other tiny frogs naturally wanted to know how this one frog managed to do it?
A contestant asked the tiny frog how he had found the strength to succeed and reach the goal?
It turned out....
That the winner was DEAF!!!!
The wisdom of this story is:
Never listen to other people's tendencies to be negative or pessimistic.... because they take your most wonderful dreams and wishes away from you -- the ones you have in your heart!
Always think of the power words have.
Because everything you hear and read will affect your actions!
Therefore:
ALWAYS be.... POSITIVE!
And above all:
Be DEAF when people tell YOU that you cannot fulfill your dreams!
I really do feel in my heart I will be one of the lucky ones. I will get to the top of my hill (I will live for another 20 yrs)
Tuesday, 8 September 2009
Re-realised
It breaks my heart to think I won't be around to see jamie grow, to be happy and to see what kinda person he will be. It is also even more sad to think that my illness/death will have a major impact on his life and influence who he is (no matter what his age). Knowing that it's all gonna be because of me and what will ultimately happen to our family, makes me deeply sad.
Realistically Jamie will be 20yrs old at absolute best case. So to think my little man will be without me so young in his life, really pains me to even think about it.
I can handle the idea of being ill and all the stuff that comes with that.....premature death bla bla. But when it comes to my little man, it cuts like a knife through my heart to think how all this will effect him.
All you mums must understand?
Or maybe not as this is not your reality? and you can take it all for granted?
Anyway need to go and have a bit of a cry now x x
Saturday, 5 September 2009
Fantastic Day
Thursday, 3 September 2009
What Are Friends For
love you
cheers
what are friends for
if not to wipe our tears
What are friends for
to fix hair
not pull it
share chocolate
not steel it
to borrow
not lose it
to giggle
not snear it
to smile
not glare it
to care
not dismiss it
What are friends for
not gossip
keep secrets
not to snap
have patience
not to distance
find ways
not to forget
to important
not to judge
be open
We say where would I be without you
a cry
no shoulder
too scared
no hand
an outfit
no honesty
a joke
no laugh
an insult
no backup
lack confidence
no reassurance
be silent
no trust
What are friends for
to be loved
to love
to be true
to be there
just for you
~ Jane Shann 2009
Wednesday, 2 September 2009
Reactions and relationships
When I was diagnosed I thought my friends and family would be upset at first (naturally) but then be strong for me, support me and want to spend precious time with me!
But shock and I think the hardest part of my diagnosis, it wasn't and isn't that way.
The initail reaction was, to visit me, bring me flowers, send me messages, cry etc but I found it was like grief when someone dies. You have the initail reaction from those around you and support for a few months, but then you are pretty much left to get on with it.
Friends: (I always seem to come back to friends, don't I?) Some people expected me to carry on as before and be there for them! Other friends stopped contact with me (not sure if its because they couldn't handle what was happening to me or they found it too awkward to be around me) Some friends kept in touch occassionally, but often cancelled when they had arranged to meet or visit me (this happened quite regularly and I came to expect it) Some didn't get in contact for ages and then half heartedly did.
I really didn't expect it to be like that at all and was so surprised when it was! and frankly pissed off, very hurt and felt unloved. I did lose the plot abit and email what i thought at the time were 'all the non bothered peeps' a harsh email telling them what I thought and thought if they were any kinda friend they would reply!
Since then I have tried putting myself in their shoes and thinking what if it had been one of my friends? I'd like to think i'd be there for them. If I was unsure of how to be there for them or what to say, then I would ask or just let them know regularly I was here and thinking of them. Who knows! who knows how i'd react in that situation. You don't know until your in it I spose.
It was a really hard time, as I was going tho my own shit and It seemed like a lot of people were just thinking of themselves. As i've said in one of my previous posts 'we all have our own little soap oprera's going on' and I did find it hard to see outside of my own. Yeah I might of had a rant and emotional out bursts at my friends, but hey was I not a little bit intitled?? or was it not even little bit expected??
I think a lot of my friends and family see me as a rock, always there, always able to sort out and help with their problems, a positive person, an independant strong person and maybe it scared them to think I wasn't that person anymore. Again who knows? or maybe being that strong and independant person scared people off, as I was always very definate about things. How I wanted and expected everything to go or be.
Its weird when you look back on yourself and reflect! I must of made it really hard for people to be my friend.
Anyway also a shock was people I didn't know that well made the effort to contact me and send me emails and didn't shy away when I had a rant. They also made the effort to vist me and bring me cake, which is always good. A few friends and family emailed me regularly though my tough times, which helped so so much and I felt I wasn't so alone. They spent the time to send me long chatty emails and for that I am so grateful.
So even though I lost friends or the friendships have become distant or non existant. I've also gained some friendships and I'm sure I will continue to do so as my life and future take different directions.
Friendships/relationships are important to me, I guess thats why I go on about it!! Even though I view a lot of things a lot differently now, it is still an important part of my life.
I think that is about it for now, I know I can get a bit heavy sometimes and I do want to say how it is now, 9 months on but that can wait for another day.
I didn't really mention my family either but hey! that can come another day (maybe)
I do get a bit lost with my posts sometimes. I start with a really specific thing I wanna say and then I get a bit lost and end up chatting about something else!!
Till next time, tickle tickle :-)
Trikin it large today
I have been trikin it large today, triking everywhere. Me and Jamie got caught in the wind and driving rain this afternoon. We had r full waterproofs on, but I couldn't go very fast and it made my face and hands sting a bit. Jamie didn't complain once.
It has been a pleasure to spend time with him today. He's been funny, loving, cheeky, considerate, helpful and many other things....a couple of naughty moments! but hey he's 2.
Oh he also got a sticker at pre-school for tidying away the toys.
All in all a good day :-) Knackered tho.
Tuesday, 1 September 2009
Hello all you yummy people
Got to the gym, did an hours workout and then triked it back to my house. Hence the reason I haven't moved since about 6pm. Wine and a cornetto are helping ease my muscle aches :-)
I have been reading all your comments and I may not get around to answering them, but its so good to share.