P.s ...........

No seizures for a week either :-)

Quote of the day

Remember to remind your children that you love them, even when they are being little shits. Don't just assume that they already know.

Things are looking up

My headaches and tiredness have subsided. My energy levels are finally starting to come back. For the last few months I haven't been able to do practically anything after 2pm because of my tiredness and energy levels being so crap. So to be able to cook my boys dinner two days in a row has been fab. I know it doesn't seem like much, but it is for me. Lee has been fab with doing everything to help me out for more than the last few months.
I'm no where near normal with my energy levels etc, but at least I'm getting closer.
Had a full on day, doing everything with Jamie and I asked him "what was the best thing about your day Jamie?" and he said "Daddy coming home" yeah thanks Jamie :-) I am bloody knackered tho and could go to sleep right now.

Anyway I said I'd keep you up to date with the weight thing. Well I'm really chuffed to tell you, I've lost 9lb in 5 weeks and that has nothing to do with my med's :-) and I'm still working really hard and get to my goal.

So far, not so good

So far I've been having.....
Dull headaches, I'm even more tired and I have sore eyes at the end of every day. I am also getting tension headaches at the base of my skull and all this has been since I started Topiramate on Friday.
I have started on a low dose of 25mg just at pm. On Thursday I go up to 25mg am & pm. I will see how I go on 25mg am & pm, if things don't improve then I will get in contact with my consultant.

Quote of the day

It doesn't matter what the day throws at us, as long as we have love, a smile and a hug to get us through it.

I'm positive, yet realistic

When I start a new drug, I'm always in two minds.
Excited that this could be the one that sorts out my seizures and improves my quality of life. Dread, that I could suffer loads of new side effects that will make me feel like utter shit and have to put up with it for a week or so.
My consultant say's I should give any new drug a week or so, to see if my body adapts to the drug or not.

New drug 'Tropiramate' (drug#5)

Start a new drug tomorrow called 'Tropiramate' lets hope he is my mate!!!

Main side effects: weakness, tiredness, dizziness, pins and needles! loss of appetite and weight loss.
Report promptly: unsteadiness, slowing or shakiness, speech problems, mental/mood changes, stomach/abdominal pain
Unlikely but report promptly: itching, trouble or rapid breathing, fast/slow or irregular heart beat, loss of consciousness, fever.
Rare but very serious: Eye problems can occur suddenly. Vision change/blurred vision, eye pain or redness.
Other: Risk of kidney stones.

So far with all the previous drugs I've tried, I've gotten between 1-4 of the main/most common side effects.
Lets keep everything crossed that this one ' Topiramate' is my mate and I don't have any side effects.
I said to Lee the only side effect I won't get is weight loss!!!
Staying on good old 'Lamotrigine' (drug#3) as my base line drug. Till I know what this new drug is like.

Will keep you updated

Quote of the day

Life is what you make it
~ Jane Shann 2010